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My love is sooooooooooo fatigued these days, but perhaps a bit of new hope on the horizon. It does make me so sad when I talk to her over the phone and I can tell how tired she is that day.
Today is her last day on the Incivek pills. It's been 3 months now.
That is the third drug in the cocktail, the one that has made her new hope possible after all these years. The new crusader. The double edged sword.
My prayer is that upon discontinuing the Incivek, some of her side effects may wain over the next few weeks and give her some relief. She shall no longer have to schedule her life around eating and taking those purple pills, no longer have to worry about stuffing herself with 20 grams of fat 3 times a day before she takes them. No having to get up at 5am, eating and taking the pills, no having to stay up until after 10pm to take the last dose of the day.
The docs still want her to keep up the ribavirin and interferon for another, I dunno......loooooooooooong time. Months.
But if she can get a little relief from discontinuing 1 of her meds, maybe she can deal with it.
I have read stories from other people on this treatment.....
Some claim relief within days. Some claim the side effects actually became amplified when they stopped Incivek.
I can only hope and pray for the best in Lori's case.
Her blood tests Tuesday indicated her anemia had not gotten worse, yet she is soooooooo tired lately. Maybe being able to sleep more shall help.
She goes to Froedert's hospital for another checkup with her primary on Monday.
I'll keep you posted if there is anything more newsworthy to share.
Otherwise, it's just a continuing struggle for her.
Please continue to send her your prayers and wishes of support, strength, and comfort. They shall not go unused.
God Bless,
Mark
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"Ask not, what your kitty can do for you. Ask what you can do for your kitty."
As it is kitten, so shall it be done.
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*hooks up an amplifier to my thoughts and good hopes and flips the switch*
I will add her to the list of people I keep in my heart for good health and kikkem sum buttedness against illness.
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I has a MiniCity :)
http://en-ki-du.myminicity.com |
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Yes, I do hope Lori will be feeling better soon.
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BSG Anthem
My Facebook page
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*hooks up an amplifier to my thoughts and good hopes and flips the switch*
I will add her to the list of people I keep in my heart for good health and kikkem sum buttedness against illness.
Thanks, Julie.
Turn that amp up to 11....LOL.
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"Ask not, what your kitty can do for you. Ask what you can do for your kitty."
As it is kitten, so shall it be done.
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She's tired, but I just talked to her.....
Wondering what she can stomach for that last 20 gram fat meal and those last two pills.
I do so hope there is some relief for her on the horizon soon.
Meow.
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"Ask not, what your kitty can do for you. Ask what you can do for your kitty."
As it is kitten, so shall it be done.
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 CarlosVolunteer tester
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Joined: 9 Jun 99
Posts: 9705
Credit: 24,509,852
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Mark,
It's so good to see you hanging in there. Her treatment is such an ordeal that it's good have friends around. Wishing you and Lori the best.
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Andrea & I thinking of you both. Hang in there Mark & give Lori our regards.
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Wishing Lori relief and healing. |
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From our house to yours, prayers are going out daily
for Lori's recovery. Pass along our best wishes to
Lori so she will know there are lots of us praying
for her. prayers to help you stay strong are also
being included Mark. If there is anything we can
do to help, don't hesitate to ask.
Tom & Jo H.
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From our house to yours, prayers are going out daily
for Lori's recovery. Pass along our best wishes to
Lori so she will know there are lots of us praying
for her. prayers to help you stay strong are also
being included Mark. If there is anything we can
do to help, don't hesitate to ask.
Tom & Jo H.
Thank you so much.
Nothing you or even I can do......except wait...and those prayers, of course.
And give support when we can.
There are times, sitting on the couch with her to give her company, that I can tell she is so driven down even I cannot really do much else than to just be there.
And that is a very powerless feeling.
You all have given so much.....maybe that is why she has made it this far....
Meow.
Mark
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"Ask not, what your kitty can do for you. Ask what you can do for your kitty."
As it is kitten, so shall it be done.
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It will go better for her with you helping, just hang in there.
I am lucky, I have LSM.
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It will go better for her with you helping, just hang in there.
I am lucky, I have LSM.
The battle is lost without one beside.
You know that. As do I.
Carry on, then. Carry on.
I have kitties......but they do not know the battle beyond.
They know only me.
Celt, my friend, you, and Lori, will persevere. You must.
Love and kitty kisses.
Mark
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"Ask not, what your kitty can do for you. Ask what you can do for your kitty."
As it is kitten, so shall it be done.
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To all of those......who seem now to be fighting for their lives.......
My Lori.......our John.....Celt......\
I wish you all our best chemistry can offer now.
Our bodies have left us, for sure.
Our souls, and our friends, have not.
Say no more, say no more, say no more.
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"Ask not, what your kitty can do for you. Ask what you can do for your kitty."
As it is kitten, so shall it be done.
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Mark & Lori,
I'm glad to see that this particular step in your treatment is drawing to a close (I talk to you both - while Lori is actually taking the tablets, its a treating you both, and has been tough on you both, albeit in different ways).
Mark has been, and continues to be, a great friend to you Lori, and I'm grateful that you have one who has stood so firmly beside you, loves yo and cares for you.
I will of course continue to pray for you both, God Bless the two of you.
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Bob Smith
Member of Seti PIPPS (Pluto is a Planet Protest Society)
Somewhere in the (un)known Universe? |
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Not nearly as hard on me as on her...........
But I suffer too.
Thanks a million for the thoughts.
Meow.
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"Ask not, what your kitty can do for you. Ask what you can do for your kitty."
As it is kitten, so shall it be done.
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Mike Volunteer tester
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Joined: 17 Feb 01
Posts: 19481
Credit: 21,121,634
RAC: 25,668
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My very best wishes and prayers for you and Lori Mark.
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Passing onn 230V, 13A, thoughts of calming and healing from this home to Lori and Mark
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It's good to be back amongst friends and colleagues
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Ya know......
It just struck me like Thor's hammer.
The reason I like some of these gurl singers so much is they remind me of Lori when she was young and strong.
Mind you, some of them were before her I met her, but some afterwards.
All I Wanna Do...
No wonder I love her so much......
She don't look like that these days, but then again, neither do I, as it were.
Love, once rendered, does not pass easily.
And, it never has in my case
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"Ask not, what your kitty can do for you. Ask what you can do for your kitty."
As it is kitten, so shall it be done.
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FYI, ribavirin is known for her thyroid depressing side-effects.
The fatigue, also mostly comes from hypo-thyrioidie, too low T4, tyrosine the hormone and a high T.S.H. (Thyroid Stimulating Hormone).Signal from the 'brain'.
It's also one of the strongest Anti-Viral agents. Unfortunatly, also
with the most and worst side-effects.
But you also can't stop for a few weeks. Consult your physician and ask
about the thyroid glands.
(Had to use it myself, for 6 months in a row, also PEG-alpha-interferon-2b
injections, twice a week).
I know 'what it is', so I'll send her my best wishes........
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Knight Who Says Ni N!, OUT numbered................. |
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Thank you for the update Mark, I'm glad there's one treatment Lori can knock off the list, more importantly the side effects, please pass along a WOOHOO from me.
Oh, and if she asks why your shouting WOOHOO, tell her some guy on the internet told you to :)
Sending my best wishes as always-ZS
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In an alternate universe, it was a ZX81 that asked for clothes, boots and motorcycle.
Beer/wine o'clock, the best of the o'clocks.
Humpty dumpty sat on a wall, along came a giant, and cooked him for breakfast. |
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